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Managing Dysphagia in Adults with Intellectual Disability – Webinar Recording

Originally broadcast Wednesday, June 17, 5:00 pm Pacific




Webinar Description:  

Adults with intellectual disability are at risk for dysphagia.  The unique swallowing, feeding, and behavioral challenges experienced in this population are vital considerations in the assessment and treatment of these patients.  This webinar will discuss the nature of dysphagia management in adults with intellectual disability by exploring the current evidence in this area and discuss the clinical experiences of speech pathologists who assess and treat adults with intellectual disability in the Intermediate Care Setting.

At the completion of this webinar, participants will:

  • Understand the impacts of dysphagia in people with intellectual disability
  • Identify the systems that must be considered in the assessment and treatment of dysphagia in those with intellectual disability 
  • Anticipate the physical-nutritional needs of those with intellectual disability as they age
  • Describe the interdisciplinary team collaborations required to manage dysphagia in this population

Meet the Presenter

Melissa Farrow, MS, CCC-SLP, BCS-S


Melissa’s area of expertise is in the management of disordered swallowing in medically complex populations. Melissa earned her master’s degree in Speech-Language Pathology from Duquesne University in 2012 and since then, her passion for helping patients with swallowing problems has been the driving force of her career. Melissa is board certified as a Swallowing Specialist by the American Board of Swallowing and Swallowing Disorders, holds certification as a Modified Barium Swallow Impairment Profile (MBSImp) clinician, and has earned four consecutive ACE awards from the ASHA for her exceptional commitment to continuing education in dysphagia.

Currently, Melissa works as a speech-language pathologist for the Texas Health and Human Services Commission, where she serves as Chair of the Physical-Nutritional Management Team in caring for those with intellectual disabilities and complex medical conditions.  Melissa also conducts research in dysphagia management and oral care in those with intellectual disabilities and has been invited to present her work both regionally and nationally. She is also an active member of several organizations dedicated to advancing the art and science of swallowing and advocating for patients with swallowing disorders.


Cost: FREE. This webinar is free to all registrants. We recognize the financial hardship that is impacting many throughout the globe due to the pandemic. As a non-profit, we feel this too. The NFOSD wants to thank Bracco Diagnostics for their unrestricted education grant.


No ASHA CEUs are offered for this webinar.


Sponsors



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Webinar! Parkinson’s Disease & Swallowing

Click to Register

 

 

 

Date and Time: Tuesday, June 25th, 2019 7:00 PM – 8:30 PM EDT

 

Learner Outcomes: 

  • Discuss the prevalence of swallowing problems in Parkinson’s and why patients may under-report
  • Associate a gastrointestinal model of Parkinson’s disease (PD) with dysphagia
  • Identify clinical symptoms that may represent a swallowing problem
  • Review the effect of dopamine replacement and DBS on swallowing function.
  • Describe Parkinson’s affect on respiratory function and breathing-swallowing coordination
  • Recognize the importance of clinical and instrumental swallowing assessments in guiding treatment, including swallowing exercise/s
  • Understand the patient’s perspective about swallowing problems and Parkinson’s disease as they relate to: timing of referrals, adherence to treatment recommendations, and quality of life

 

Meet the Presenter:

Mary Spremulli, MA, CCC-SLP has been a healthcare provider for over 30 years, and currently holds a nursing license in Florida and speech-language pathology license in Florida, Ohio, and North Carolina. She is owner of Voice Aerobics, LLC, a speech-language pathology private practice located in Punta Gorda, Florida, and is also the creator of the Voice Aerobics® family of products which blend the art and science of voice therapy into fun home-based practice. Her blog has been selected as one of the top 49 blogs about Parkinson’s disease, and she currently serves on the Education Committee of the World Parkinson’s Program, and the Medical Advisory Board of the Neurochallenge Foundation, Sarasota, Florida.

https://voiceaerobicsdvd.com/

 

No ASHA CEUs will be offered for this webinar.

 

Cost:

  • Free for 2019 NFOSD Members
  • Become a Member: Click Here
  • For Non-Members: $10/webinar

 

Medical disclaimer. This Webinar is for informational purposes only and should not be used as a substitute for consultation with an appropriate health care professional, as each individual’s medical situation is unique. It is important that you consult with your medical professional (e.g., physician, SLP) before implementing any course of treatment. Experiences that are new to you should be done with the help of a caregiver and when access to emergency medical care is available.



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Dysphagia Awareness Month Infographic



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Albert J. Ingrassia Paint It Forward Event

By Lisa Ingrassia-Neuman

The night began with me addressing a packed room of painters with the following, “I’m going to ask a few questions. If they apply to you, please keep your hands up. Raise your hand if you have a loved one who has suffered from a stroke. Raise your hand if you have a loved one who suffers from Alzheimer’s. Raise your hand if you have a loved one who suffers from dementia. Raise your hand if you have a loved one living with multiple sclerosis. Raise your hand if you have a loved one who is a head and neck cancer patient.” The list of individuals affected by a swallowing disorder is endless, and at that point the entire room had their hands up. I then told my guests, “And that, folks, is the reason why we are here to paint it forward, for everyone feeling isolated by living with a swallowing disorder.”

I founded the Albert J. Ingrassia fund after my father fought a very long brave battle with complications from Stage IV head and neck cancer. He suffered from severe dysphasia and spent the last four years of his life living on a PEG tube, unable to eat or drink orally. When my father lost his ability to eat, I lost a tremendous piece of my heart.

Our entire society revolves around food and meals. For people with dysphagia, like my Dad, life as you know it ceases to exist. Several studies conclude that between 300,000 and 600,000 individuals in the United States are affected by a neurogenic dysphagia each year. 10 million Americans are evaluated each year for swallowing difficulties. Because this disorder cuts across so many diseases, dysphagia is poorly understood and often under diagnosed. It is my personal mission to raise awareness and help the countless patients and families living with dysphagia.

Each year, I host Paint and Sip night where a portion of the ticket sales go to the Albert J. Ingrassia fund, a special endowment fund with the National Foundation of Swallowing Disorders.

On May 6th, nearly 45 people attended the Albert J. Ingrassia Paint It Forward held in Red Bank, NJ. We are truly blessed to be supported by so many people and to have held this event for the second year in a row. Words cannot describe how incredible it was be surrounded by people who are touched by our mission and story. To know that our efforts are truly having an impact is what continues to motivate us.



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Contest Rules

The 2019 #IDDSIchallenge! 


Rules and Regulations

Be creative, be respectful to those who require modified diets, and have fun!

  1. Entries can be submitted by anyone: an individual, a corporation, a restaurant, a group of friends, a healthcare organization, a family!
  2. Multiple entries are allowed.
  3. Entries must be original. You cannot share a video that you did not create.
  4. In order for IDDSI and the NFOSD to view entries, you must assure your privacy settings for the post is set to “Public.”
  5. In order for IDDSI and the NFOSD to view entries, you must include #IDDSIchallenge and tag @NFOSD.
  6. Entries must be submitted by June 20th, at midnight GMT.
  7. By submitting a photo, you are confirming that anyone pictured has provided their consent for this to be shared publicly.
  8. By submitting a photo, you allow the NFOSD and IDDSI to share and reuse this on their websites, social media platforms, and with their mailing list.
  9. We will ask any inappropriate photos to be removed and reserve the right to not share these with our community.
  10. Any disrespectful or inappropriate comments on photos submitted will be deleted.
  11. Winners will be announced on the NFOSD and IDDSI social media platforms.