Who We Are

Our Foundation’s Journey

The National Foundation of Swallowing Disorders was founded in August 2006 as a recognized 501(c)(3) nonprofit organization dedicated to advancing the understanding and treatment of dysphagia. The Foundation emerged from the determination of individuals inspired by the challenges faced by dysphagia patients, including founding members Dr. Peter Belafsky, a leading otolaryngologist, and Jan Pryor, a speech pathologist and dysphagia consultant. Together with dysphagia patient Sonia Blue, they envisioned a comprehensive resource for dysphagia education and patient support.

Mike Donovan joined the team as treasurer and fundraiser, establishing a strong financial foundation that allowed the organization to flourish. We fondly remember Mike, who bravely battled head and neck cancer for 23 years until his passing in April 2018 (see In Memoriam below).

In August 2012, the Foundation Board of Directors unanimously elected Ed Steger as the new President. Ed graciously accepted this role on September 1, 2012, and has continued to lead the organization towards its mission of support and advancement in dysphagia care.

Our Board Members

Ed Steger
President
Sonia Blue
Former President, Board Member
Jan Pryor
Board Member, Support Group Coordinator
Laura Michael
Treasurer
Michelle Ciucci
Secretary
Liza Blumenfeld
Board Member
Teresa Suit
Board Member
Jeffrey B. Palmer
Board Member, Emeritus

Our Medical Director

Peter Belafsky
Medical Director

Our Medical Advisory Board

Nancy Swigert
Medical Advisor
Donna Edwards
Medical Advisor
Shumon Dhar
Medical Advisor
Apoorva Ramaswamy
Medical Advisor

Our Executive Director

Elizabeth Lipton Daly
Executive Director

In Memoriam

Michael Donovan
Co-Founder, Board Member in Memoriam