Topic 1 – Dysphagia Symptoms & Daily Impact

Of all the health effects of dysphagia, what symptoms have the most significant impact on you or your loved one’s life?

How does dysphagia affect you or your loved one on best and on worst days?

How have your or your loved one’s symptoms changed over time? How has the ability to cope with the symptoms changed over time?

Are there specific activities that are important to you or your loved one that you/they cannot do at all or as fully because of dysphagia?

What do you fear the most as you or your loved one gets older? What worries you most about your or your loved one’s condition?

Topic 2 – Current & Future Dysphagia Treatments

What are you currently doing to treat or manage your or your loved one’s dysphagia?

How well do these interventions treat the most significant symptoms and health effects of dysphagia?

What are the most significant downsides to your or your loved one’s current treatments and how do they affect daily life?

Short of a complete cure, what specific things would you or your loved one look for in an ideal treatment for dysphagia?

What factors would be important in deciding whether to participate in a new research trial?