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One Simple Way to Help Raise Dysphagia Awareness (ESSD World Swallowing Day Survey Results)

Recently, the National Foundation of Swallowing Disorders posted a survey on our website as a part of ESSD (European Society for Swallowing Disorders) World Swallowing Day.

This survey was designed to determine the use of ICD (International Classification of Diseases) codes for dysphagia in medical reports.  The World Health Organization defines the ICD as, “the standard diagnostic tool for epidemiology, health management and clinical purposes. This includes the analysis of the general health situation of population groups. It is used to monitor the incidence and prevalence of diseases and other health problems, proving a picture of the general health situation of countries and populations.”

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Book Review: “Being Mortal” by Atul Gawande

Being Mortal

[Editor’s note: Laura Michael and I both read Dr. Gawande’s latest book. Although his focus wasn’t about swallowing disorders, he recognized and articulated the importance that meals play in our connecting with everyday life. More importantly, the impact of losing or diminishing one’s ability to enjoy meals with others and how integral this basic function is to our surviving and thriving. For these reasons, among others, we highly recommend as a “must read” his new book. This book is for everyone! Ed Steger, President, NFOSD]

Byline: Laura Michael, owner of Dysphagia Solutions and an NFOSD Board Member

I read Atul Gawande’s marvelous book “Being Mortal: Medicine and What Matters in the End.” Dr. Atul Gawande is a surgeon, a professor at Harvard Medical School and the Harvard School of Public Health, a writer for the New York Times, and the author of three bestselling non-fiction books on science and public health. He makes difficult subjects interesting and understandable. You don’t have to be a scientist to understand and enjoy his books.

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Fears of Living with Dysphagia

[Editors note. We would like too thank each and every one of the 180 participants that took place in this dysphagia “Fear” survey. As someone who suffers from dysphagia and their caregivers, we hope this provides you with some knowledge that you are not alone in your fears; as a professional who supports this community, we hope this provides you with a unique insight in to the fears faced by your patients. Please feel free to provide comments at the bottom of this article.] 

The NFOSD was contacted a few months ago by the caregiver of a family member with dysphagia. She claimed that choking is the number one fear of both those suffering from a swallowing disorder and their care providers. While this certainly may be true of this individual’s situation, the question of fear in the swallowing challenged-community piqued our interest. To help gain insight into this question, we reached out and asked our community members to see what fears they face when living with dysphagia.

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The New York Times’ Green Smoothie Taste Challenge

Byline: Laura Michael (NFOSD Board member and owner of Dysphagia Solutions)

When you are having trouble swallowing, eating enough green leafy vegetables can be a unique challenge, so I was excited when I saw the May 2, 2014, New York Times article “Drink Your Greens” by Martha Rose Shulman. Click here to read Martha’s article.

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What do those with a swallowing disorder fear?

Updated 9/15/2014 – We closed this survey today after collecting 180 responses in the past 3 weeks. We’re analyzing the results and hope to publish them in an upcoming article. Email us at info@nfosd.com with any questions. 

A member of our community asked. We didn’t have an answer; so, we’d like your help in developing some insight and a response to the question on what patients with a swallowing disorder fear. Click here to go directly to the for survey.

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