Share this post: ×

Looking Down the Barrel of a Feeding Tube

Barbara

Byline: Barbara Blades

January 2005

The last time I can remember eating normally was January 2005. My birthday is on January 5th and I had already planned on eating someplace special. On January 4th I had a biopsy, and following my birthday on the 7th I learned I had stage 3 squamous cell carcinoma.   It was in the lymph nodes of my neck and in the base of my tongue.

continue reading →



Share this post: ×

Couldn’t Believe It

Byline: Gloria Hevener

[Editor’s note: The NFOSD would like to thank Gloria for sharing her story. We have posted a few questions for our readers to consider at the bottom this article. We welcome your thoughtful comments and reserve the right to moderate them as needed.]

My name is Gloria Hevener.  I am 76 years old with two daughters, a son, four grandchildren and one great grandchild.  My last job was a Program Manager in Network Operations at Sprint.  I loved my work and luckily, as a result of my job at Sprint, I am very technology savvy and can use my computer and iPad to my advantage.  My husband and I did lots of traveling during our first years of retirement – nearly around the world.

continue reading →



Share this post: ×

YOU’RE IN THE ARMY NOW – Diary of a Survivor of Swallowing Boot Camp

by Stephen Alan Boyar

[NFOSD note. Join author Steve Boyar on his journey through an intense ten-day swallowing boot camp at MD Anderson Cancer Center. Experience with him his hope, determination, reality, and reflection on the drive to regain what most people take for granted, an ability to enjoy a meal, coffee, or drinks with family and friends. A journey update will be posted daily over the next eleven days.]

After a long career as an advertising copywriter and marketing executive, Steve is reinventing himself as a writer of stories for children. He recently earned his Master of Fine Arts degree in Creative Writing from The New School, and is working on a picture book and middle grade novel. He also tutors kids in writing and English. Steve can be reached at stephenalanboyar@gmail.com.

© 2013 Stephen Alan Boyar

continue reading →



Share this post: ×

Meet May Roberta Roméy – She has Dysphagia

[Editor’s note: I had the opportunity to interview this wonderful woman recently. She also traveled from the NYC area to join NFOSD at our meeting with NIH (pictured at left) in mid-May 2013. Here is her story, as told beautifully in her own words. We thank May for the courage to share her story.]

Tell me a bit about yourself before your stoke?

I assisted students who were preparing to enter college, helping them select their Major and emphasizing the importance of starting and finishing school.  I was known as having impeccable enunciation and pronunciation.  I wrote, directed and performed in radio skits for a NY Radio Station and at one time was scheduled to be a TV spokesperson.  My written communication skills including: grammar, spelling and punctuation were excellent.  At one time I freelanced as a Publicist/Marketing Specialist for community theatre, small business and celebrities.  I was published in an anthology and wrote for a couple of magazines, once upon a lifetime ago.

continue reading →



Share this post: ×

The Hungry Games – A True Short Story of Life With Dysphagia

juliashaybiopicByline: Julia Shay Tuchman is a writer and intuitive living in New York City. Having dealt with chronic illness and dysphagia for much of her life, Julia now writes and teaches about self-love in the face of any circumstance. She teaches this because it is a lesson she herself is here to learn. Julia is currently busy working on her memoir and taking care of her six-pound rescue dog Bellie, who in turn offers lessons in unconditional love. www.juliatuchman.com

continue reading →