Share this post: ×

Kindness, a Powerful Force: During our Darkest Moments There is Light

Published by nfosdadmin

Byline: Lisa Ingrassia

On Sunday, February 19th with the love and support of great friends I hosted my first “Paint It Forward” event at Pinot’s Palette in Red Bank, NJ.  The energy in the room was electric, you could feel the love.  52 beautiful people came out to celebrate my father’s life and help raise awareness for swallowing disorders!!!  We had a packed house and are grateful to everyone who came out to support the Albert J. Ingrassia Fund! It was a fabulous night of laughter, kindness and love.  To learn more about what prompted this event, please continue reading. continue reading →

Share this post: ×

Your Cancer Game Plan

Published by nfosdadmin

Pro Football Hall of Famer Jim Kelly is sharing his personal experience as part of “Your Cancer Game Plan.” This new awareness campaign focuses on tackling the emotional, nutritional and communication needs of those facing cancer. To help address these challenges the campaign aims to provide support and resources, including Kelly’s video on how to remain positive along with healthy recipes for those with head and neck cancer.  Jim’s hope in sharing his experience is to inspire others to act and know their game plan.

Your Cancer Game Plan is a collaboration between U.S. and International industry and patient advocacy groups. Click here for further information.

Share this post: ×

My Belly Has Two Buttons

Published by nfosdadmin

meikeleBy Meikele Lee, author of the children’s book “My Belly has Two Buttons” and lives in Helena, Mt.  She received a 2017 Purple Dragonfly Book Award; Honorable Mention in the category Special Needs/Disability Awareness. She is a wife and mother to 3 amazing children, one of whom has a feeding tube.  She has been in cosmetology for over 10 years, but became passionate about blogging when her youngest child’s oral aversions became life threatening.  She used blogging to try and understand her son’s condition and how he can relate to others with or without a feeding tube, and to help educate the public about these life saving devices. continue reading →

Share this post: ×

A Moveable Feast

Published by nfosdadmin

004-1It’s hard to know which events inform our reality and which only mark the passing of time.

Waking up in the hospital with a brand new feeding tube on board was clearly one of the former.

But there I was.

I had resisted repeated proposals from medical professionals to have a g-tube inserted. They warned of the worsening dysphagia I faced due to the effects of radiation for throat cancer I’d had years earlier. continue reading →

Share this post: ×

A Newfound Meaning to Life

Published by nfosdadmin

Byline: Steve Clark from Camp Verde, AZ

In the years since I was first diagnosed with head and neck cancer I have come to one realization. There is no such thing as a “typical” case. So many delicate and complex systems pass through that part of the anatomy that every survivor tells a different story. This is mine. Glean from it what you will. I hope that it may be of help to someone. continue reading →