Your Cancer Game Plan

My Belly Has Two Buttons

A Moveable Feast

A Newfound Meaning to Life

I Love You Even If This Is Forever

Published 01.25.201701.26.2017 by nfosdadmin

Pro Football Hall of Famer Jim Kelly is sharing his personal experience as part of “Your Cancer Game Plan.” This new awareness campaign focuses on tackling the emotional, nutritional and communication needs of those facing cancer. To help address these challenges the campaign aims to provide support and resources, including Kelly’s video on how to remain positive along with healthy recipes for those with head and neck cancer. Jim’s hope in sharing his experience is to inspire others to act and know their game plan.

Your Cancer Game Plan is a collaboration between U.S. and International industry and patient advocacy groups. Click here for further information.

Published 11.25.201608.27.2019 by nfosdadmin

By Meikele Lee, author of the children’s book “My Belly has Two Buttons” and lives in Helena, Mt. She received a 2017 Purple Dragonfly Book Award; Honorable Mention in the category Special Needs/Disability Awareness She is a wife and mother to 3 amazing children, one of whom has a feeding tube. She has been in cosmetology for over 10 years, but became passionate about blogging when her youngest child’s oral aversions became life threatening. She used blogging to try and understand her son’s condition and how he can relate to others with or without a feeding tube, and to help educate the public about these life saving devices. continue reading →

Published 11.25.201608.27.2019 by nfosdadmin

004-1 It’s hard to know which events inform our reality and which only mark the passing of time.

Waking up in the hospital with a brand new feeding tube on board was clearly one of the former.

But there I was.

I had resisted repeated proposals from medical professionals to have a g-tube inserted. They warned of the worsening dysphagia I faced due to the effects of radiation for throat cancer I’d had years earlier. continue reading →

Published 08.01.201608.01.2016 by nfosdadmin

Byline: Steve Clark from Camp Verde, AZ

In the years since I was first diagnosed with head and neck cancer I have come to one realization. There is no such thing as a “typical” case. So many delicate and complex systems pass through that part of the anatomy that every survivor tells a different story. This is mine. Glean from it what you will. I hope that it may be of help to someone. continue reading →

« November 2019 »

Published 06.02.201606.03.2016 by nfosdadmin

Three years ago this month, Julia Tuchman wrote one of our most read patient stories titled “The Hunger Games.” She has gone on to publish an updated story in Elephant Journal that has received over 20,000 views since its publications in May 2016. Julia is an active member of the National Foundation of Swallowing Disorders and an inspiring advocate for dysphagia awareness. At the end of her article, the NFOSD Swallow Documentary has been included to allow those not familiar with swallowing disorders to gain perspective into the lives of those living with dysphagia.

Link to Article: http://www.elephantjournal.com/2016/05/i-love-you-even-if-this-is-forever-a-tale-of-chronic-illness-and-chronic-longing/