Meet our 2018 Faces of Dysphagia
June is recognized as National Dysphagia Awareness Month. The following photos show our brave volunteers: patients, families, and caregivers who don’t let dysphagia hold them back.
Thank you to our volunteers and generous donors who sponsored our social media campaign to help raise funds for dysphagia advocacy, support, education, and research!
Byline: Tom Dawson, an expert world traveler and tube feed user, has contributed blog posts to the NFOSD to raise awareness about traveling with a feeding tube. His prior posts include: A Moveable Feast (11/25/16) and Traveling Space Available II (6/20/17).
Mackenbach, Germany
December 3, 2016 at 0900 hours
Many years ago, I wrote an article for a travel magazine called “You and Europe” in a city not far from here. The article, which dealt with hitchhiking rides on military aircraft throughout what we used to call the “European Theater” was titled “Traveling Space Available.”
Now, years later, and traveling with a gastric tube feeding apparatus on board and a supply of formula, I find those words take on a very different meaning. Will there be space available on the airplane for my supply of formula? Is there “space available” in the cabin for the occasional and necessary feedings? Can I replenish my supply of formula while traveling here in the USA and abroad? Will I join my wife or others for meals out in cafes or restaurants? Is it all worthwhile? continue reading →
By Diane Wolff
I am an author who gave up the writing life in the big city to return to the family and take care of my mother. The late, great Cathie G was one of a kind: energetic, spunky and independent. She had a great sense of humor and she ruled her children with an iron hand. She was a great mom for me and when she asked me to take care of her, I could not refuse. continue reading →
Byline: Lisa Ingrassia
On Sunday, February 19th with the love and support of great friends I hosted my first “Paint It Forward” event at Pinot’s Palette in Red Bank, NJ. The energy in the room was electric, you could feel the love. 52 beautiful people came out to celebrate my father’s life and help raise awareness for swallowing disorders!!! We had a packed house and are grateful to everyone who came out to support the Albert J. Ingrassia Fund! It was a fabulous night of laughter, kindness and love. To learn more about what prompted this event, please continue reading. continue reading →