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Meet May Roberta Roméy – She has Dysphagia

[Editor’s note: I had the opportunity to interview this wonderful woman recently. She also traveled from the NYC area to join NFOSD at our meeting with NIH (pictured at left) in mid-May 2013. Here is her story, as told beautifully in her own words. We thank May for the courage to share her story.]

Tell me a bit about yourself before your stoke?

I assisted students who were preparing to enter college, helping them select their Major and emphasizing the importance of starting and finishing school.  I was known as having impeccable enunciation and pronunciation.  I wrote, directed and performed in radio skits for a NY Radio Station and at one time was scheduled to be a TV spokesperson.  My written communication skills including: grammar, spelling and punctuation were excellent.  At one time I freelanced as a Publicist/Marketing Specialist for community theatre, small business and celebrities.  I was published in an anthology and wrote for a couple of magazines, once upon a lifetime ago.

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The Masako Maneuver

Byline: Jan Pryor, CCC-SLP, BRS-S

The swallowing exercise with the strangest name……

No, this is not a Sumo wrestling move, it is a swallowing exercise for people with dysphagia!

What is it?

The Masako Maneuver was introduced by Jerilyn Logemann and Masako Fujiu around 1996 as a pharyngeal strengthening exercise.

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The Hungry Games – A True Short Story of Life With Dysphagia

juliashaybiopicByline: Julia Shay Tuchman is a writer and intuitive living in New York City. Having dealt with chronic illness and dysphagia for much of her life, Julia now writes and teaches about self-love in the face of any circumstance. She teaches this because it is a lesson she herself is here to learn. Julia is currently busy working on her memoir and taking care of her six-pound rescue dog Bellie, who in turn offers lessons in unconditional love. www.juliatuchman.com

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“Hydration, Hydration, Hydration!”

Fire hydrant

Byline: Laura Michael (Dysphagia Supplies Direct, LLC; http://www.dysphagiasupplies.com/)

[Editor’s note: Please share this article with your patients, family, and friends who may be at danger of dehydration as we enter the hot summer months.]

Water is an essential element for sustaining life. The human body is composed of more than 60% water. Without water, we won’t survive for more than a few days. For those with a swallowing disorder, staying properly hydrated creates its own unique challenges.

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Not Just a “Fear of Food” – Pediatric Dysphagia

 

Meet Jayden… a healthy, cute, full of life five year old. Every parent’s dream. But, don’t take our word for it, watch this KATU (Portland) newscast which aired on June 10, 2013 and read his story.

Pediatric dysphagia is more common than generally believed. For additional information, click here to read about “Jayden’s Journey” from the beginning.