The NFOSD is excited to share with you insightful tips and innovative healing therapies, patient stories and successes, and news about our growing community. Please check back for future releases of our newsletter, or even better, sign up to automatically receive our periodic newsletters via email. We welcome you to our community.
On March 9, 2013 we published an article on a ground breaking swallowing treatment initiative to infuse adult stem cells into a human tongue by Christmas day 2014. [Click here to view that article].
Two days later, on March 11, 2013, we received an “A List” tour of the UC Davis Institute for Regenerative Cures (IRC). The NFOSD would like to thank our hosts Dr. Peter Belafsky (Phase I trial Principal Investigator), Dr. Jan Nolta (IRC director), Gerhard Bauer (Director of Good Manufacturing Practices), and Jane McClusky (tour facilitator extraordinaire).
The NFOSD had the privilege of attending the 8th annual Advance Practices in Speech and Dysphagia Conference. The meeting held February 24th to 26th in Las Vegas and aptly nicknamed the Sin City Laryngology Conference was packed with almost 300 speech language swallowing professionals, Speech Language Pathologists and Physicians.
UC Davis (Sacramento), March 9, 2013 – Researchers at this University of California campus have announced plans to develop a clinical trial where they would infuse adult human stem cells into the tongues of a small set of swallowing impaired patients by Christmas day 2014. Although stem cells have been used successfully in the treatment and repair of other human organs and tissue, this will be the first step in a process to strengthen and restore a vital part of one’s swallowing function.
Over the next few weeks, NFOSD will be meeting with Congressional staff members in both the Senate and House of Representatives to raise dysphagia awareness and seek guidance on how to increase federal funding for swallowing disorder research.
NFOSD launched a petition two weeks ago to increase swallowing disorder awareness and research funding at NIH. The petition is an important step in raising awareness and increasing attention to swallowing disorders. Meeting with Congressional staff members is another way of achieving those goals.
LET’S MAKE OUR VOICE BE HEARD: SIGN THE PETITION AND SHARE IT. Do it for someone you love or someone you don’t even know. Do it for those still isolated and suffering. Let’s not rest until they too can have birthday cake, thanksgiving dinner, hot soup on a cold day, cool water on a hot day and can sit at our tables once more.