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A Walk Through the Fire: A Resource for HNC Patients

Published by nfosdadmin

The Head and Neck Cancer Living Foundation out of Kansas City put together a 15-minute documentary describing the journeys of six head and neck cancer survivors from diagnosis through the aftermath of the treatments.

The HNC Living Foundation funded this video to help compassionate people understand the devastation and intensity of the process and to draw donations to help those who have no insurance, are under-insured or who’s insurance simply runs out. The costs of living after the treatment can break a person financially and emotionally.

Watch this video: https://vimeo.com/212089320

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Your Cancer Game Plan

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Pro Football Hall of Famer Jim Kelly is sharing his personal experience as part of “Your Cancer Game Plan.” This new awareness campaign focuses on tackling the emotional, nutritional and communication needs of those facing cancer. To help address these challenges the campaign aims to provide support and resources, including Kelly’s video on how to remain positive along with healthy recipes for those with head and neck cancer.  Jim’s hope in sharing his experience is to inspire others to act and know their game plan.

Your Cancer Game Plan is a collaboration between U.S. and International industry and patient advocacy groups. Click here for further information.

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How do you die of Parkinson’s Disease?

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The NY Times has a periodic “Ask Well” series that runs a few times monthly and health experts (we assume) answer reader’s questions. The question of how people die from Parkinson’s disease was in today’s newspaper and resonated with me. Years ago, I asked a similar question of my surgeon, but for head and neck cancer. The most common cause of death for someone with Parkinson’s disease is pneumonia. The cause of pneumonia is aspirating foods and liquids into the lungs due to a compromised swallow.

Here’s a link to the story:

http://well.blogs.nytimes.com/2017/01/13/how-do-you-die-of-parkinsons-disease/

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Xerostomia = Dry Mouth

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Byline: Jennifer Kurtz is a Speech Language Pathologist and stage IV oral cancer survivor practicing at Overlake Medical Center near Seattle, Washington. Her experience has given her an unexpected, yet unique, perspective on the clinician’s role in the management of the Head & Neck Cancer population and has motivated her to advocate for aggressive, collaborative, multi-disciplinary care of all patients across a broad continuum.

Xerostomia describes the subjective sensation of oral dryness and is commonly called “dry mouth.” The typical causes of dry mouth include medications, radiotherapy to the head and neck for cancer treatment, and systemic diseases.

mouth

Xerostomia can have a profound, negative impact on quality of life. The lack of salivary production impacts the ability to eat, sleep, speak, and swallow (Lew & Smith, 2007). Adequate salivary flow allows us to speak clearly without our lips sticking to our teeth and to mix saliva with food when we chew to enable easy transfer through the oral cavity as we swallow. Inadequate salivary function can create a number of complications such as: continue reading →

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Deciphering Dysphagia

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Byline: Tiffany Turner, MS, CCC-SLP, Owner, Swallowing and Neurological Rehabilitation, www.tulsasnr.com. Tiffany founded a dysphagia focused outpatient center in 2014 to serve the northeastern Oklahoma region and fill a gap in her community, as she feels adult speech pathology services are often misunderstood and underutilized. She is also an author and publishes resources for other SLPs to use with their patients which have been downloaded by over 2,000 speech-language pathologists worldwide.

Dysphagia, or difficulty swallowing, affects up to 15 million adults in the United States. According to past publications, 1 in 25 people will experience some form of dysphagia in their lifetime, including 22% of those age 50 and older (ASHA, 2008; Bhattacharyya, 2014). People at the greatest risk for swallowing impairments include individuals who have had strokes, those with neurological conditions (such Parkinson’s disease), survivors of head and neck cancer, and the elderly. Despite the significant prevalence of dysphagia, this medical condition is often neglected, and many sufferers are never properly diagnosed or treated.

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