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Persons with Parkinson’s Disease and Dysphagia

 

By: Mary Spremulli, CCC-SLP. Ms. Spremulli is the owner of Voice Aerobics, LLC, a Speech-Language Pathology Private Practice, located in SW Florida. She holds a speech-language pathology license in Florida, Ohio, and North Carolina, and a nursing license in Florida. She is a faculty member of Parkinson Place in Sarasota, FL, and a member of the Education Committee of the World Parkinson Program. Ms. Spremulli has been a Clinical Consultant with Passy-Muir, Inc. for over 20 years providing education to professionals and patients, and she has published articles on the topic of patient education. Since 2013, Ms. Spremulli has hosted a monthly podcast, focusing on topics related to living well with Parkinson’s and other neurological diseases.


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Couldn’t Believe It

Byline: Gloria Hevener

[Editor’s note: The NFOSD would like to thank Gloria for sharing her story. We have posted a few questions for our readers to consider at the bottom this article. We welcome your thoughtful comments and reserve the right to moderate them as needed.]

My name is Gloria Hevener.  I am 76 years old with two daughters, a son, four grandchildren and one great grandchild.  My last job was a Program Manager in Network Operations at Sprint.  I loved my work and luckily, as a result of my job at Sprint, I am very technology savvy and can use my computer and iPad to my advantage.  My husband and I did lots of traveling during our first years of retirement – nearly around the world.

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Swallowing and Parkinson’s Disease

Parkinsons disease (small)

Byline: Michelle Ciucci, PhD, CCC-SLP is an Assistant Professor in the Departments of Communication Sciences and Disorders, Surgery-Otolaryngology Head & Neck Surgery, and the Neuroscience Training Program at the University of Wisconsin-Madison. Michelle recently joined the NFOSD as a board member.

[Publisher note. Michelle Ciucci wrote this article for publication on the Michael J. Fox Foundation for Parkinson’s Research website. It was published on 11/5/2013 and can be viewed on their site by clicking here. The NFOSD is continually exploring ways in which we can work with other non-profit foundations where swallowing disorders present a significant risk to the members of their respective community’s.]

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Meet May Roberta Roméy – She has Dysphagia

[Editor’s note: I had the opportunity to interview this wonderful woman recently. She also traveled from the NYC area to join NFOSD at our meeting with NIH (pictured at left) in mid-May 2013. Here is her story, as told beautifully in her own words. We thank May for the courage to share her story.]

Tell me a bit about yourself before your stoke?

I assisted students who were preparing to enter college, helping them select their Major and emphasizing the importance of starting and finishing school.  I was known as having impeccable enunciation and pronunciation.  I wrote, directed and performed in radio skits for a NY Radio Station and at one time was scheduled to be a TV spokesperson.  My written communication skills including: grammar, spelling and punctuation were excellent.  At one time I freelanced as a Publicist/Marketing Specialist for community theatre, small business and celebrities.  I was published in an anthology and wrote for a couple of magazines, once upon a lifetime ago.

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