Forum Replies Created
05.17.2016 at 8:20 am in reply to: How little other people understand what we go through #4078Katwoman57Participant
Thank you so much for that response. It is so comforting to know that you are not alone. I am so glad that you are able to get nourishment through your G-Tube. I have often thought if that is not the answer for me as well. At least some way to get water into my body. The last nine years of chronic dehydration have wreaked havoc on my health. I no longer can exercise or exert myself because I cannot drink when I am thirsty. If I take a long walk, I get dizzy, faint and nauseous. My hair is falling out by the handfuls. My skin is wrinkling SO fast. I am looking so old and it is depressing. I used to have people compliment me on how much younger I looked than I am, but no more. I look older than my age, in my opinion.
I want you to know that you are in my thoughts and prayers with your struggle. Thank you for your response and for taking time to listen. I am going to try your technique!! Hopefully, in time, we will both get victory over this. Continue to heal, my friend.04.27.2016 at 7:20 am in reply to: How little other people understand what we go through #4045Katwoman57Participant
I too, struggle with dysphagia on a daily basis and have for almost 9 years. From the outside, I look fine to other people, but the battle and suffering within are sometimes unbearable. My difficulty is in swallowing liquids instead of foods, unless it is something juicy like fruit or soup. I had several episodes while drinking water or coffee in which my larynx would completely close and I could not breath, cough, or talk. I just had to wait it out and eventually my throat would start to open back up. These events were so terrifying that I was afraid to swallow liquids in fear of it happening again. I went to and ENT and he discovered I had GERD which had caused inflammation of my larynx so that was probably why it was occurring. He put me on Nexium to heal the larynyx and sent me to a speech therapist because by this time I could no longer swallow properly. I could no longer swallow without concentrating on it and trying so hard not to choke. I went to speech therapy and did exercises etc until I could no longer afford it. It did not help. I then thought that maybe a hypnotist could help me. No help there either. I had to start taking anti-depressants because I was becoming depressed, anti-social and withdrawn. It is so awful to be so thirsty and not be able to quench your thirst. I am chronically dehydrated which has affected my skin and hair. I have a lot of UTI problems. I then tried going to see a clinical behavior psychologist to try and change the way I think about swallowing. I attended several sessions, with little help, but had to stop because of financial issues. It has now been almost 9 years and I still battle this every day. I have to get up an hour earlier than normal just to try and get 8 ounces of water down before I go to work. I don’t dare take a sip of anything in front of anyone. I am afraid of choking in front of people. When I eat, I can eventually swallow, but the food lays in the back of my throat until it “feels” right and my swallowing function finally kicks in. I feel that my swallowing muscles no long know how to work correctly. I feel like I fight this battle alone, that no one understands, and there is no one else who could possibly have this problem. I find myself watching other people drink a glass of coke, tea or whatever and I just wish so much that I could do that again!! I found this website and I am looking forward to being a part of it. Thanks for listening.