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  • in reply to: Learning to swallow again after choking #4771
    Jules2k1
    Participant

    Hi everyone and thanks for sharing your experiences mariax. It’s so good to know we are not alone! I fell pregnant in April and thought this is the last thing I need, i couldn’t feed myself let along a growing foetus! Then I got admitted to hospital three times with quincy which meant I had over 30 needles put into my throat in less than a month. During this I changed my therapist who focused on the anxiety. Gradually I have started to swallow larger quantities but this will go up and down with my mood.it has been up for a couple of months now and I gave birth this week, since I have eaten so well and so quick, i think breastfeeding is helping as my appetite seems to be back too! I struggled when pregnant to get enough calories in but made sure I was getting the right foods with the right nutrition but we’ve made it and my new baby is healthy and normal. I now feel there is an end to this one day, i feel I just need to be more confident with the swallow and one day it will be back to normal. Like you say mariax just keep practicing the foods you enjoy and don’t put pressure on yourself or care what other people think. I find it helps to take off my plate half the portion if it is served too big or only order a starter and a dessert if I go out for a meal. Dig deep for underlying causes that may have caused anxiety. Mine has been having over 10 bereavement’s in two years, learned behaviour from my father when growing up being told I was useless and then the choking incident just put the whole thing to the extreme of a swallowing problem. Stay strong people and looking forward to your updates. Merry Christmas! (even if it’s on a liquid diet make sure it contains some brandy lol) xxx

    in reply to: Learning to swallow again after choking #4135
    Jules2k1
    Participant

    Jerry I hope you can get someone to help you regain your swallow. I am now using a new therapist to deal with finding the root causes of my anxiety of swallowing and not focus on the swallow itself. I have had tonsil abcess quinsy 3 times in one month and as a result been in hospital for the most of the month. I saw a speech and language therapist who couldn’t help me whilst there but I’m still waiting to see another to see if there is a different opinion. I have heard that stretching the oesophagus can cause problems, have you tried strengthening the throat? I have recently found this exercise in a feldenkrais technique book. Yawn…and notice the muscles in the throat expand. Now keep your mouth closed and try and yawn again or Recreate the movement in the throat. I am also doing exercises to relax and strengthen the neck face and jaw as I think it may be related. The only option for me is to try as many things as possible to help myself as its the only way to fix it and I will not accept that it will be permanent. 🙂

    in reply to: Learning to swallow again after choking #3985
    Jules2k1
    Participant

    Hi all. Stella how did it go? My swallow xray was successful. The radiologist took me through the pictures and reassured me that everything is functioning as normal so that is good news and now I can rest that it is definitely a psychological problem. Afterwards I came home and swallowed three bits of Chinese chicken and a piece of beef from my partners takeaway meal the evening before. Unfortunately this didn’t continue and today at my therapy she made me try and swallow normally again and I felt like I was choking again. I had to get her to hit me on the back. She is blind and I had told her I was unhappy about performing the task as she can’t see me to help. Anyway that’s what CBT is all about is proving that your phobia is unlikely to ever happen again and that swallowing solid food is safe (as I didn’t choke) but I felt terrible like it was happening again. Horrible, horrible, horrible!!! But until we can face the fear this is so difficult, especially when you try so hard to swallow and you just cannot physically get it down… The nurses at the xray said they have many people coming in with the same problem and it is very commonly caused by bereavements and stress so it was good to feel that I wasn’t wasting their time and it’s common. Mind over matter….xx

    in reply to: Learning to swallow again after choking #3962
    Jules2k1
    Participant

    Hi Stella, good to hear you’ve got some answers and more investigation happening. My xray is tomorrow (I can’t sleep) I had to cancel it last Friday as I got a chest infection and inflamed trachea, typical! Lol. So luckily they booked another for only a week, still I won’t get any results for another month!!! Grrr…. Where I’ve felt so sick this week I didn’t eat for four days and when I finally felt like food I was hoping there would be a small miracle and I could swallow but no such luck! I have been taking food into my cbt therapy but I don’t think it’s really helping at the moment. I try and practice the techniques at home but it doesn’t help. I suppose I’m probably just holding out for a medical diagnosis or some exercises from a professional who can help which I hope then will flick the switch back to the ‘normal’ position in my mind. Lol. Xxx

    in reply to: Learning to swallow again after choking #3927
    Jules2k1
    Participant

    https://www.facebook.com/groups/102453736503465/ here is a group I have joined recently, is it mainly professionals but they mention in my comment that it’s important to get a diagnosis before they can give any proper advice. I suppose all we can do is keep asking our docs until they have ruled everything out and we can concentrate on our mind work lol. I have seen my therapist today and she wants me to take in a coronation chicken wrap next week and just swallow. She says her supervisor has said that I must cut out all my safety behaviours (using sauce, chewing for ages, taking tiny bits down etc) and just swallow. I said that it’s alright for him to say!!!! Just swallow. Lol. It seems crazy to think but the mind is so powerful, it can just switch off a mechanism but the overall thing makes sense. Swallow test is on the 11th Stella, i have told them I’m not comfortable swallowing just like that until damage is ruled out. I’d prefer it if there was a first aid trained person in the room too, no offence to my therapist but she is blind and can’t see what is going on but I fully appreciate the work she is trying to do with me about controlling the mind and it’s behaviours. Xx

    in reply to: Learning to swallow again after choking #3925
    Jules2k1
    Participant

    Wow thanks so much for everyone’s support in this forum. It’s so good to be speaking to people who know what is happening and how we are feeling. My cbt therapist called today to ask to extend our session tomorrow to start experimenting with food. I already told her I’m not comfortable with it really until I’ve had some medical confirmation from the xray. I have made such an effort this week to try and regain the natural swallow. I realise I am preventing it and holding everything I have chewed in the front of my mouth and taking little bits down slowly so I have tried to allow the natural suck reflex to allow food to follow it’s natural course along the inside of my cheeks which I want to think is working although I still stick to the safe foods and meat and fish is impossible lol! I hope to look back at this in a few months and think what on earth was going on, swallowing is easy! But easier said than done! On my safe list is cheese and soft crackers, weetabix, blueberries, mushy peas, toast (sometimes), baked beans, chocolate buttons and kinder Bueno, very blended smooth home made soup and smoothies. My cholesterol has probably gone through the roof lol. Thanks for the sweet potato recipe and the reassurance on the xray. I look forward to hearing everyone’s updates and hang in there, we’ll get there! Xxx

    in reply to: Learning to swallow again after choking #3912
    Jules2k1
    Participant

    Karel, i really hope you can start adding new textures and variety into your diet. I feel you pain with ignorant docs..I really wish they’d give them more training on awareness on dysphagia. Don’t feel like you need to rush. Just go with what you feel comfortable with. I found mash potato and cheese sauce was on my safe list early on. Keep a list of what you have managed, it works well for inspiration and to remind yourself that you managed it previously. Sorry my battery is about to go so I’ll check in soon. Thanks again both for commenting here, it’s really appreciated xxxxx

    in reply to: Learning to swallow again after choking #3911
    Jules2k1
    Participant

    Thank you so much for writing and sharing your experiences. I’ve been in a dark place the past couple of weeks. Just as I think I’m getting somewhere I crash again and can barely swallow my own saliva. It’s so annoying. I finally got to see a throat specialist after five months who was absolutely disgusted that my docs had waited so long and fobbed me off with anxiety all this time. He couldn’t believe I haven’t had a meal since September and lost two stone in the first four weeks. I saw him this week and he’s ordered a swallowing xray. Have either of you had this? I’ve read you have to swallow lying down which scares me rotten! Lol. In the meantime I’m seeing a CBT specialist who says it’s all in my head. I really actually hope it is all in my head to be honest. I asked the throat specialist if there’s any exercises I can do and he wasn’t into giving me any until he’s done the xray, i suppose then he’ll know which area to focus on and which exercises are best. I had an mri scan and that was clear so that part put my mind at ease. Xxx

    in reply to: Learning to swallow again after choking #3682
    Jules2k1
    Participant

    Still seem to be taking three steps forward, two steps back. Beginning to wonder if this will ever go away…trying to stay in control. Xx

    in reply to: Learning to swallow again after choking #3650
    Jules2k1
    Participant

    Just an update…have managed to stay on a fairly steady stream of mash and very soft veg. Weetabix and small amounts of toast but by the evening things seem to be a lot harder to manage so sometimes just agree that I’ve had enough for the day after lunch. Treat myself with brie probably more often than I should. I have stopped losing weight so dramatically so must be doing something right. Two stone in four weeks but I had it to lose but didn’t want to cheat it which is the reason I was at the gym in the first place. Managed a run this week following a successful breakfast of dippy eggs. Would love to hear from anyone else struggling after choking. There is absolutely no support for this in the UK. Xx

Viewing 10 posts - 1 through 10 (of 10 total)