Dining Out with Dysphagia: An Open Conversation
Hosted by David “Woody” Rule, PhD, CCC-SLP & Anna Birkemeier, B.S.
Wednesday, June 29 at 4pm Pacific (7pm Eastern)
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Swallowing Problems in Neurologic Disease: Why isn’t there a pill for that yet?
By Michelle Ciucci, PhD, CCC-SLP
Originally Broadcast on Monday, June 13 at 4pm Pacific
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Thursday, December 2 at 8am Pacific (11am Eastern)
IDDSI and the National Foundation of Swallowing Disorders present a special webinar focusing on patients with dysphagia and what they may face during the holiday season.
NFOSD Board Member and nutritionist, Laura Michael, will bring her industry and caregiver experience in diet modification, and share tips on how to safely and joyfully celebrate the holidays when you have swallowing problems, offer tools to enjoy food and social gatherings, and how to navigate the social and emotional aspects of the holidays, while incorporating the IDDSI standards into holiday celebrations.
As a bonus, Chef Diane Wolff of Essential Puree has generously offered to share a free, downloadable copy of her “Purees of Fall: The Holiday Meal” PDF with our community that includes some excellent holiday recipes that may be safe (and delicious!) for those who modify their food consistency to a puree.
Additionally, if you would like Diane Wolff’s two books in the Purees of Fall series, Game Day and Snacks and Shakes, please email her at firstname.lastname@example.org and she will email you the links to download copies.
Questions about the webinar? This webinar is hosted by IDDSI. Please reach out to email@example.com for more information.
On August 19, in collaboration with 3 head and neck cancer nonprofits, the NFOSD hosted a meeting that gave patients and families impacted by chronic dry mouth a way to share the impact of living with xerostomia. The meeting gave FDA and other key stakeholders, including medical product developers, health care providers, and federal partners, an important opportunity to hear directly from patients, their families, caregivers, and patient advocates about the symptoms that matter most to them, the impact it has on patients’ daily lives, and patients’ experiences with currently available treatments. This input informs FDA’s decisions and oversight during drug development in addition to their review of a drug’s marketing application.