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Sound Bytes Podcast Recordings

The NFOSD Sound Bytes mini-podcast series focuses on the experiences of patients and caregivers living with dysphagia. Each episode provides personal insights and stories, highlighting the challenges and strategies involved in managing this condition. The series aims to raise awareness, offer support, and share practical advice from those directly affected by dysphagia.


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Ron’s Journey with Dysphagia

Meet Ron:

Husband, father of 4, grandfather of 5, active tennis enthusiast, yogi, Penn State Emeritus Master Gardner. And now, a person living with dysphagia.


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From Feast to Fiasco

From Feast to Fiasco: a feeding tube journey through the eyes of a caregiver

By Arline Berens


THE HOSPITAL

Ever heard of a feeding tube? Yeah, me neither.

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Superhero Bodhi

When you think of a newborn baby you think of soft, cotton white sleep-suits and cuddly elephant toys. The term “pediatric dysphagia” had never entered our mind, let alone did we understand the consequences it would have for our family.

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Mia’s Story

Meet Mia. A three-and-a-half-year old little girl from a small town in Massachusetts. Severe dysphagia, microcephaly, laryngeal cleft, hip dysplasia, club feet, nystagmus, AND the ONLY person in the world missing the chromosome she is missing. Thriving day by day, and becoming an amazing independent little girl.

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