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Unidentified Causes of Dysphagia

WHAT ARE NEXT STEPS WHEN THE CAUSE OF DYSPHAGIA HASN’T BEEN IDENTIFIED?

Dysphagia can be exhibited in many ways: coughing, choking, feeling like food is sticking, difficulty or pain with swallowing, bringing food back up, and others.  Sometimes the dysphagia is accompanied by, or can cause, changes in overall health, like weight loss or changes in lung health.    Sometimes the cause of these dysphagia symptoms is obvious, such as when a person has a neurological disease (e.g. Parkinson’s, dementia), has experienced a traumatic episode (e.g. stroke, head injury), or has head and neck cancer.

However, sometimes the symptoms of dysphagia cannot easily be tied to an obvious cause, and therefore no treatment plan can be developed. When that happens, it can be very frustrating and you may feel abandoned by the medical team. What steps can you take if you find yourself in that situation?

  1. Do some research on your own on the web to see if there is any information about swallowing symptoms similar to yours.  Be sure you are reviewing information on reputable sites, such as the Mayo Clinic, medicinenet.com, WebMD, etc.  
    • Take good notes on what you read and list the site(s) where you found the information.
  2. Make note of anything you do, or any circumstances, that make the problem better or worse.
    • Better or worse at certain times of the day or night?
    • Relieved or made worse when eating or drinking certain foods?
    • Better or worse when sitting, standing or lying down?
  3. Meet with a member of your medical team, share all of this information,  and pose a series of questions:
    • Review all of your medications (prescription and over-the-counter) with the medical professional and ask if any of those medications might be contributing to your symptoms.
    • Be sure the medical professional is aware of any other medical problems you are having, or have had in the past. Some of these problems might not seem obviously related to your current symptoms, but relationships like that aren’t always clear. For example:
      • ‘Indigestion’ might not seem related to a feeling of a lump in the throat, but the indigestion might be reflux and that feeling of a lump in the throat is likely related.
      • Feeling strain when talking or having a persistent cough might not seem related to pain with swallowing, but it could be.
    • Are there any other diagnostic tests that are indicated to gain more insight into the problem?
    • What are those tests and what further information might be gained?
    • Has the medical professional ever seen another person who presents with symptoms similar to yours?
    • Is there another medical professional you should consult?
    • If you are very anxious about your problem, discuss how anxiety can make certain symptoms worse.
  4. Seek out an assessment at a multi-disciplinary swallowing center. This might be called a Swallowing Center, Swallowing Clinic, Voice and Swallowing Center or Dysphagia Center. Because dysphagia symptoms may seem like they are occurring in one part of the body, but actually originate in another, a multi-disciplinary team that can be found at these centers is often indicated to take a holistic look at the presenting problem.  These specialized centers are usually affiliated with large university systems and would ideally include professionals from specialties such as:
    • Neurology
    • Gastroenterology
    • Otorhinolaryngology
    • Speech-Language Pathology (one with Board Certification in Swallowing). You can check the website of the American Board of Swallowing and Swallowing Disorders to find such a professional: https://www.swallowingdisorders.org/

If you need any assistance finding a specialist, you can reach out to the NFOSD at info@nfosd.com. Our medical advisory board can help provide referral information for the most appropriate specialist.



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Webinar Recording: Finding the Right Professional(s) for your Swallowing Disorder

Presented by Nancy B. Swigert, MA, CCC-SLP, BCS-S

Click here for a recording of the live webinar broadcast on September 30, 2014.

In this webinar, you will learn the role of different medical specialists in addressing swallowing problems. The different physician specialists are described, such as the ENT, the gastroenterologist, and more. The role of the speech-language pathologist in evaluating and treating all types of problems is described in detail in addition to the process and requirements needed to become a board certified specialist in swallowing and swallowing disorders (BCS-S).

Nancy B. Swigert is the director of Speech-Language Pathology and Respiratory Care at Baptist Health Lexington at their acute care facility in Lexington, KY.  She is a Board Certified Specialist in Swallowing and Swallowing Disorders (BCS-S).  She is an adjunct faculty member at the University of Kentucky. She has authored six publications with Linguisystems (one on adult and one on pediatric dysphagia) and she lectures extensively in the areas of pediatric and adult dysphagia.  She received her master’s degree from the University of Tennessee-Knoxville.   She currently chairs the American Board of Swallowing and Swallowing Disorders. She was president of the American Speech-Language-Hearing Association in 1998 and chaired the Special Interest Group on Swallowing for three years. She is on the Medical Advisory Board for the NFOSD.

For more information about future webinars, as of mid-October 2014, please click here.



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Finding the Right Swallowing Specialist

By: Nancy B. Swigert*, M.A., CCC-SLP, BCS-S

[Editor’s note – We asked Ms. Swigert to write this article in response to the inquiries we receive weekly from people who feel they have been pushed aside by their physician when searching for assistance with a swallowing issue. There is a common set of themes… my doctor doesn’t believe me, he doesn’t see anything wrong (it’s in your head; have you seen a psychiatrist), and he can’t refer me to someone who might help. Although not every swallowing disorder can be addressed; there are science-based assessment tools and therapeutic techniques that can alleviate many swallowing issues. This article is a resource to help you find a clinician who is right for you.]  

If you or your loved one has a swallowing problem, you may have experienced frustration as you looked for the right person to help. Often, the first call should be to a speech-language pathologist (SLP), but not just any speech-language pathologist. Because speech—language pathologists have a wide scope of practice, not every speech-language pathologist knows about swallowing.

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Finding Help for Your Child with Dysphagia

By: Nancy B. Swigert, M.A.,CCC-SLP,BRS-S

You’re worried about your child’s feeding and swallowing skills.  Maybe your child is still taking the bottle when her peers are drinking from a cup. Perhaps your child is choking and gagging when eating certain foods.  Or maybe your child, who used to take the bottle with no problems,  screams every time he sees the bottle and refuses to drink.  Or maybe your child has taken the term “picky eater” to new heights; picky doesn’t begin to describe the limited list of foods your child will eat. Perhaps you’ve had to stop taking your child out to eat at restaurants because his tantrums during meal times draw too much attention. Or your child tries new foods, but spits them out and refuses to swallow.

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