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Tube feeders and caregivers in the Boston area needed: 2/28 – 3/1 ($200 fee paid)

The NFOSD would like to alert appropriate interested parties to this opportunity to support feeding tube research and earn some money at the same time. This opportunity is being coordinated by the Oley Foundation (www.Oley.org).

A research company is looking for patients and caregivers to give feedback on a prototype of a new tube feeding pump. Participants must have at least 6 months of experience using a pump. Adolescent (13+ y.o.) and adult patients are invited to participate, as well as caregivers of pediatric patients. Note that patients / caregivers who participated in the May focus group or July one-on-one product evaluation interviews are not eligible to participate in these sessions.

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FEEDING TUBE AWARENESS WEEK: February 10 – 16, 2013

The Feeding Tube Awareness Foundation is hosting its third annual Feeding Tube Awareness week in February.

The mission of Awareness Week is to promote the positive benefits of feeding tubes as a life saving medical intervention. The week also serves to educate the broader public about the medical reasons that children are tube fed, the challenges that tube feeding families face and day-to-day life with a tube fed child. Feeding Tube Awareness Week connects tube feeding families. Seeing how many other families are going through similar things makes people feel less alone.

 

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NFOSD e-Newsletter (December 2012)

The NFOSD is excited to share with you insightful tips and innovative healing therapies, patient stories and successes, and news about our growing community. Please check back for future releases of our newsletter, or even better, sign up to automatically receive our periodic newsletters via email. We welcome you to our community and wish you HAPPY AND WARM HOLIDAYS with family and friends.

December 2012 Issue



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Write an article; you can help!

Dear Dysphagia clinicians, physicians, and researchers. We’d like your help. In a drive to offer further and fresh assistance to dysphagia sufferers, we’re looking for patient-oriented articles to post on our website and use the content in our growing dysphagia support group network. Whether you’ve already written an article and it’s time to repost it to a broader audience or there’s an article you’ve been thinking of writing, we’d like to share it. Help us get the word out!

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Support Group Success

Our last Swallowing Support Group was a great success. We want to thank everyone who participated for their support.