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Persons with Parkinson’s Disease and Dysphagia

 

By: Mary Spremulli, CCC-SLP. Ms. Spremulli is the owner of Voice Aerobics, LLC, a Speech-Language Pathology Private Practice, located in SW Florida. She holds a speech-language pathology license in Florida, Ohio, and North Carolina, and a nursing license in Florida. She is a faculty member of Parkinson Place in Sarasota, FL, and a member of the Education Committee of the World Parkinson Program. Ms. Spremulli has been a Clinical Consultant with Passy-Muir, Inc. for over 20 years providing education to professionals and patients, and she has published articles on the topic of patient education. Since 2013, Ms. Spremulli has hosted a monthly podcast, focusing on topics related to living well with Parkinson’s and other neurological diseases.


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It’s a Scary Time of Year

Halloween is meant to be a scary time of year. But for parents of children with dysphagia, it can be an especially frightening time of year. To kids, Halloween is the one day of the year where they are encouraged to go door-to-door asking adults for as much candy as they can carry. continue reading →



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Achalasia

By Dr. Michael Vaezi, MD, PhD, MS, Clinical Director of the Center for Swallowing and Esophageal Disorders at Vanderbilt University Medical Center. Dr. Vaezi also serves as on the Medical Advisory Board for the Achalasia Foundation.

Background:esophagus

Achalasia, a rare condition affecting about 1 in every 100,000 individuals each year, is defined as a disorder of the esophagus in which the band of muscle located where the esophagus and stomach meet fails to function properly. This muscle is called the lower esophageal sphincter (LES) and it typically relaxes when a person swallows. However, in people diagnosed with achalasia, the LES does not fully relax and the normal muscle activity of the esophagus is reduced. Therefore, food is not properly moved through the esophagus to the stomach. Classic symptoms of this disorder include difficulty swallowing foods and/or liquids (dysphagia), as well as regurgitation of undigested foods and saliva. Additional symptoms may include substernal (esophageal) chest pain during meals, significant or rapid weight loss, and significant reduction in overall quality of life. Achalasia occurs equally in men and women, typically between the ages of 30 and 60, has no racial predictor, and does not run in families.

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“Chewing Can Be Tricky” Dysphagia Coloring Book

donna edwards 2

Pediatric swallowing specialist, Donna Edwards, CCC-SLP, BCS-S, and ASHA Fellow, has created an outstanding resource for children, parents, and professionals to learn about safe eating and to reduce the likelihood of choking. This coloring book includes a long list of fun activities that parents and professionals can use to teach children about safe and healthy eating.

*All information regarding the International Dysphagia Diet Standardisation Initiative is provisional. For updates and more information, please visit: www.iddsi.org

The coloring book for young children is now available in five languages! Select your language below:

A new coloring book for school-age children is now available!



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Phagophobia: The Fear of Eating

Written by Liza Blumenfeld, MA, CCC-SLP, BCS-S

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Every human has experienced the uncomfortable sensation of choking. For many, it is a sporadic event that passes without much thinking. A loved one may offer a reminder to “slow down” or “not talk with your mouth full”. Unfortunately, for some, the fear of swallowing is an all-encompassing emotion that can render the act of eating as joyless. A small percentage of these individuals bear this burden while being told that their symptoms are essentially baseless. In other words, they are told it is all in their heads.

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