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Team “Phoenix Fury” Constructs Robotic Devise to Assist Those with Dysphagia

Team Phoenix Fury visits Dr. Peter Belafsky in January 2013 – From left to right: Hanna, Vishal, Dr. Belafsky, Aiden, Jeremy, Amrita, Akshay, and Nicole.

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Increase Swallowing Disorder (Dysphagia) Research — Support this Petition to the National Institute of Health (NIH)

This petition was closed on July 20, 2013. Over 2,500 people responded. The NFOSD shared the results of this petition with a group of senior and seasoned NIH members from five different NIH Institutes in mid-May 2013. It was a very productive exchange of ideas and perspectives. We wish to thank everyone that responded and for those reading this message for your support and interest.

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Jack is Back – Two Week Swallowing “Boot Camp”

A Daily Log of my experiences by Jack Eadon

[Editors note. The NFOSD published Jack Eadon’s story in mid-November. He has a website, www.jacksgettingback.com where he has chronicled his medical and personal journey. On January 14, 2013 he began an intensive two week “Boot Camp” to try and regain his swallowing ability. As President of the NFOSD, I communicate with a lot of people suffering from dysphagia. One of the pleasures of this position is meeting other people, like Jack, who are determined and committed to do what they need to succeed. The NFOSD wishes Jack the best and hopes this intensive approach to therapy opens a new avenue in our arsenal for fighting dysphagia.]

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Bittersweet Nectar – The Journey of a Mom and Her Son

By Jaime Bailey (Eli’s mom)

[NFOSD note – Jaime shares the 5 most helpful tips for families experiencing a similar experience at the bottom of this article.]

The NFOSD shared my son’s story with you recently; I thought it might be helpful to others if I shared my story.  My beautiful, energetic, happy, 2 year old baby boy, the joy of our life, has severe dysphagia.  I know there are lots of other mothers out there just like me.  We are not alone!  Raising the awareness of swallowing disorders is a small step that can help millions.

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NFOSD e-Newsletter (December 2012)

The NFOSD is excited to share with you insightful tips and innovative healing therapies, patient stories and successes, and news about our growing community. Please check back for future releases of our newsletter, or even better, sign up to automatically receive our periodic newsletters via email. We welcome you to our community and wish you HAPPY AND WARM HOLIDAYS with family and friends.

December 2012 Issue