The NFOSD is pleased to announce the creation and addition of a Medical Advisory Board (MAB) to the foundation. TheMABis a major step forward in achieving our mission of improving the quality of life for those suffering from dysphagia, raising public and government awareness about this disorder, and ultimately increasing the funding for direct patient support and research. Initial board members include Nadine Connor, Jan Lewin, Christy Ludlow, and Nancy Swigert. Although for many, introductions are unnecessary, these initial committee members have focused on education, research, and direct patient support of swallowing disorders for a combined total of over 100 years. Nancy was a past ASHA President and is currently the BCS-S chair, Christy was at the National Institute of Health for 25 years before recently joining James Madison University, Nadine is an Associate Profession at the University of Wisconsin and runs a robust research lab, and Jan is on the faculty at the University of Texas MD Anderson Cancer Center and a national and internationally recognized dysphagia expert.
Christmas is a time of giving, joy and sharing family traditions. Gathering at the table to eat is one way we share our love, show our humanity and share our cultural traditions.
When you are having trouble swallowing, the act of eating can be scary or difficult. Not being able to eat what everyone else is eating may make someone feel socially uncomfortable. Often, those who are experiencing the after effects of a stroke, cancer treatments or who are living with dementia may already be feeling isolated. Not being able to share family dinners may make matters worse.
The following is an excerpt from an article in the ASHA Leader online publication titled, “National Dysphagia Diet: What to Swallow?” It was published on November 04, 2003 and written by Gary McCullough, Cathy Pelletier, and Catriona Steele.
The National Dysphagia Diet (NDD), published in 2002 by the American Dietetic Association, aims to establish standard terminology and practice applications of dietary texture modification in dysphagia management. While the publication of common terminology is long overdue, SLPs need to exercise caution when interpreting and applying the proposed terminology. As the NDD states, “Further study and peer-reviewed, scientific data will be needed to truly quantify the management parameters surrounding the complex diagnosis of dysphagia.”
UC Davis physician, Dr. Peter Belafsky, plans to fast in solidarity with dysphagia patients
Press Release – UC Davis Health System (SACRAMENTO, Calif.) – November 21, 2012
A UC Davis physician is calling on colleagues who treat swallowing disorders to join him in a Thanksgiving fast as a way to raise awareness and show solidarity for patients who suffer from dysphagia, a condition that makes swallowing food difficult or impossible.
Peter Belafsky, a professor of otolaryngology and an expert in treating people with dysphagia, sent a message today to physicians around the country asking that they consider joining him in fasting on Thanksgiving.
Many chairs will be vacant at our Thanksgiving table this year as members of our communities and families sit this one out because dysphagia takes no holiday! The inability to swallow- to eat and drink will leave those we care most about alone and isolated because they cannot commune with family and friends over a shared meal.