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My Belly Has Two Buttons

meikeleBy Meikele Lee, author of the children’s book “My Belly has Two Buttons” and lives in Helena, Mt.  She received a 2017 Purple Dragonfly Book Award; Honorable Mention in the category Special Needs/Disability Awareness She is a wife and mother to 3 amazing children, one of whom has a feeding tube.  She has been in cosmetology for over 10 years, but became passionate about blogging when her youngest child’s oral aversions became life threatening.  She used blogging to try and understand her son’s condition and how he can relate to others with or without a feeding tube, and to help educate the public about these life saving devices. continue reading →



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A Moveable Feast

004-1It’s hard to know which events inform our reality and which only mark the passing of time.

Waking up in the hospital with a brand new feeding tube on board was clearly one of the former.

But there I was.

I had resisted repeated proposals from medical professionals to have a g-tube inserted. They warned of the worsening dysphagia I faced due to the effects of radiation for throat cancer I’d had years earlier. continue reading →



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A Newfound Meaning to Life

Byline: Steve Clark from Camp Verde, AZ

In the years since I was first diagnosed with head and neck cancer I have come to one realization. There is no such thing as a “typical” case. So many delicate and complex systems pass through that part of the anatomy that every survivor tells a different story. This is mine. Glean from it what you will. I hope that it may be of help to someone. continue reading →



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I Love You Even If This Is Forever

Three years ago this month, Julia Tuchman wrote one of our most read patient stories titled “The Hunger Games.” She has gone on to publish an updated story in Elephant Journal that has received over 20,000 views since its publications in May 2016. Julia is an active member of the National Foundation of Swallowing Disorders and an inspiring advocate for dysphagia awareness. At the end of her article, the NFOSD Swallow Documentary has been included to allow those not familiar with swallowing disorders to gain perspective into the lives of those living with dysphagia.

Link to Article: http://www.elephantjournal.com/2016/05/i-love-you-even-if-this-is-forever-a-tale-of-chronic-illness-and-chronic-longing/

 



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Imagine

Byline: Lisa Ingrassia, daughter of a head-and-neck cancer fighter who recently passed away due to complications of dysphagia. Lisa is the author of other NFOSD articles including, “Eat, Drink, and Be Merry…Or Not.”


I challenge you to think of your favorite food or beverage.  The one thing you cannot live without.  Is it your morning cup of Joe?  Or maybe it’s an ice cold beer on a hot summer day?  Or perhaps you love pasta like me?  Pasta with tons of parmesan cheese on top.  Can’t you just taste the deliciousness?  Mmmmm.  Well, sorry you can no longer enjoy those things anymore. continue reading →