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WEBINAR! Pediatric Feeding and Swallowing: A Caregiver Forum

The National Foundation of Swallowing Disorders, with support from Cook Medical, is proud to present the second series of patient-centered webinars on the latest research and information on swallowing disorders. Experts in the field of swallowing disorders will present information on topics such as esophageal dilation, lymphedema, tracheotomies, and more! If you are a Speech Language Pathologist (SLP) or know someone with a swallowing disorder, please share this web page with them.

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In Memory of Steven Leder, Ph.D., CCC-SLP, Professor, Otolaryngology, Yale

Steve LederI first met Steve in March 2013 in Seattle at the annual Dysphagia Research Society (DRS) meeting. I had recently been elected President of the National Foundation of Swallowing Disorders. Over the next few years we emailed back and forth a few times. What jumped out at me was his energy, passion, enthusiasm, advocacy, and champion of all things dysphagia. I admit, I was a bit in awe of him… past President of DRS, Yale, respected clinician and researcher, and the commander of his own life. We didn’t spend much time together, but speaking for myself and others in the foundation, he will be missed.

— Ed Steger continue reading →



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Snap & Send Campaign to Raise Awareness

June is National Dysphagia Awareness Month. This year, the NFOSD hopes to educate thousands of people around the world about the significant impact of dysphagia. To do this, we need your help!

We are looking for the faces of dysphagia. If you or a loved one are impacted by a swallowing disorder, send us a picture of yourself, the food you eat, or something that reminds you of your swallowing disorder (e.g., a restaurant you used to frequent).

It’s easy; snap and send. Email your picture to info@nfosd.com by May 23rd, 2016.

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Paid Survey Open to G-Tube Users

A research company is looking for US adult home tube feeders (age 21+) to participate in an online paid survey. Qualified participants should eat very little or no regular foods by mouth, and depend on a commercially-made formula given via a G-tube (not an J, G/J, NG, etc.) as their primary source of nutrition. Additionally, in order to qualify for this survey, participants must not require an elemental formula. continue reading →



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News Australia (News.com.AU)…

The National Foundation of Swallowing Disorders referred about 250 patients to qualified swallowing specialists, physicians, and medical teams worldwide in 2015. A few themes we hear frequently are: 1) my doctor said it was all in my head, 2) I thought I was the only one who had this condition, 3) people think I’m crazy, and 4) I’m depressed and my inability to swallow isolates me from my friends and family.

In the US, swallowing disorders affect an estimated 10 to 15 million adults annually and an untold number of infants and children.

This story appeared in yesterday’s News.com.AU publication…

http://bit.ly/1RcFhDg