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Real Science; Real Hope! – Adult Stem Cell Human Tongue Infusion Initiative (Update)

On March 9, 2013 we published an article on a ground breaking swallowing treatment initiative to infuse adult stem cells into a human tongue by Christmas day 2014. [Click here to view that article].

Two days later, on March 11, 2013, we received an “A List” tour of the UC Davis Institute for Regenerative Cures (IRC). The NFOSD would like to thank our hosts Dr. Peter Belafsky (Phase I trial Principal Investigator), Dr. Jan Nolta (IRC director), Gerhard Bauer (Director of Good Manufacturing Practices), and Jane McClusky (tour facilitator extraordinaire).

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SLPs… Just Want to Have Fun! View Amazing Laryngeal Karaoke Video.

Erin Las Vegas[Click on image to the left to jump right to the video.]

The NFOSD had the privilege of attending the 8th annual Advance Practices in Speech and Dysphagia Conference. The meeting held February 24th to 26th in Las Vegas and aptly nicknamed the Sin City Laryngology Conference was packed with almost 300 speech language swallowing professionals, Speech Language Pathologists and Physicians.

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Breaking News – UC Davis (UCD) Launches Human Tongue Stem Cell Initiative

Stem cell initiative imageUC Davis (Sacramento), March 9, 2013 – Researchers at this University of California campus have announced plans to develop a clinical trial where they would infuse adult human stem cells into the tongues of a small set of swallowing impaired patients by Christmas day 2014. Although stem cells have been used successfully in the treatment and repair of other human organs and tissue, this will be the first step in a process to strengthen and restore a vital part of one’s swallowing function.

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NFOSD Reaches Out to Capitol Hill

Over the next few weeks, NFOSD will be meeting with Congressional staff members in both the Senate and House of Representatives to raise dysphagia awareness and seek guidance on how to increase federal funding for swallowing disorder research.

NFOSD launched a petition two weeks ago to increase swallowing disorder awareness and research funding at NIH.  The petition is an important step in raising awareness and increasing attention to swallowing disorders.  Meeting with Congressional staff members is another way of achieving those goals.

LET’S MAKE OUR VOICE BE HEARD: SIGN THE PETITION AND SHARE IT. Do it for someone you love or someone you don’t even know.  Do it for those still isolated and suffering. Let’s not rest until they too can have birthday cake, thanksgiving dinner, hot soup on a cold day, cool water on a hot day and can sit at our tables once more.

Petition URL:

http://swallowingdisorderfoundation.com/support-this-petition-to-nih-increase-swallowing-disorder-dysphagia-research/



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Tube feeders and caregivers in the Boston area needed: 2/28 – 3/1 ($200 fee paid)

The NFOSD would like to alert appropriate interested parties to this opportunity to support feeding tube research and earn some money at the same time. This opportunity is being coordinated by the Oley Foundation (www.Oley.org).

A research company is looking for patients and caregivers to give feedback on a prototype of a new tube feeding pump. Participants must have at least 6 months of experience using a pump. Adolescent (13+ y.o.) and adult patients are invited to participate, as well as caregivers of pediatric patients. Note that patients / caregivers who participated in the May focus group or July one-on-one product evaluation interviews are not eligible to participate in these sessions.

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