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Tough to Swallow

Kate

Byline: Kate Kelsall is an award-winning blogger about Parkinson’s Disease and co-hosts a Deep Brain Stimulation (DBS) support group she started in Denver, CO. Her experiences as a social worker, combined with living with Parkinson’s Disease for the past 20 years and having DBS for the past 10 years, make her well-suited to viewing Parkinson’s from both of the perspective of patient and professional. She is dedicated to guiding individuals and families through the DBS experience. Check out her blog at: http://katekelsall.typepad.com/my_weblog/


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Persons with Parkinson’s Disease and Dysphagia

 

By: Mary Spremulli, CCC-SLP. Ms. Spremulli is the owner of Voice Aerobics, LLC, a Speech-Language Pathology Private Practice, located in SW Florida. She holds a speech-language pathology license in Florida, Ohio, and North Carolina, and a nursing license in Florida. She is a faculty member of Parkinson Place in Sarasota, FL, and a member of the Education Committee of the World Parkinson Program. Ms. Spremulli has been a Clinical Consultant with Passy-Muir, Inc. for over 20 years providing education to professionals and patients, and she has published articles on the topic of patient education. Since 2013, Ms. Spremulli has hosted a monthly podcast, focusing on topics related to living well with Parkinson’s and other neurological diseases.


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It’s a Scary Time of Year

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Halloween is meant to be a scary time of year. But for parents of children with dysphagia, it can be an especially frightening time of year. To kids, Halloween is the one day of the year where they are encouraged to go door-to-door asking adults for as much candy as they can carry. continue reading →



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“Chewing Can Be Tricky” Dysphagia Coloring Book

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Pediatric swallowing specialist, Donna Edwards, CCC-SLP, BCS-S, and ASHA Fellow, has created an outstanding resource for children, parents, and professionals to learn about safe eating and to reduce the likelihood of choking. This coloring book includes a long list of fun activities that parents and professionals can use to teach children about safe and healthy eating.

*All information regarding the International Dysphagia Diet Standardisation Initiative is provisional. For updates and more information, please visit: www.iddsi.org

The coloring book for young children is now available in three languages! Select your language below:

 

A new coloring book for school-age children is now available!

 



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Facing Fears and Finding Hope

My name is Fay and I am married to Gordon. I am 80 years old. Gordon is 88 and the patriarch of the Longstaff clan in Australia.

Until early in 2014, life for us had largely been a very comfortable existence, with a small, but close family, a few good friends, many friendly acquaintances, a few crafty hobbies, and basic good health. Gordon and I spent many years taking long caravan-based holidays around our vast island, and when finances permitted, a few overseas journeys, as well. We both took for granted our ability to plan the next adventure without ever anticipating a time when this would no longer be possible.

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