This story is about Eli, a bright, energetic, angel of a boy ready to take on the world. Unfortunately, Eli has been suffering from dysphagia his entire life. The rigors of set feeding schedules, uncomfortable and strenuous nutrition intake, social isolation, and emotional heartache caused by having a son with dysphagia have put a tremendous strain on his entire family and their extended social and employment infrastructure.
The NFOSD team is constantly on the lookout for useful news articles. North Shore Pediatric Therapy posted a website article on Swallowing Disorders vs. Feeding Disorders in Children on October 16, 2012. The article was written by Gretchen Olson, SLP.
We field questions almost weekly from mothers who have young children with Dysphagia. We recognize a pattern of similar characteristics from these frequent contacts. The young child has generally been seen by multiple doctors or therapists over a period of a few years and there is no definitive diagnosis, physical abnormality, or known “reason” why the child is unable to successfully eat. In addition, the amount of time and energy exerted by the mother is draining to the point of near hopelessness.
In 2003 I had a divorce, brain surgery and resulting DYSPHAGIA (inability or difficulty swallowing,) for six years I was fed by a stomach-tube ONLY! Many of us are not thankful for the intricate and instantaneous processes our body routinely performs because unless you are unusually grateful by nature, you don’t spend your waking moments giving thanks for your waking moments. You’re too busy working, doing the laundry, fighting with your spouse and wondering when you’re going to have sex again.