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Looking Down the Barrel of a Feeding Tube

Barbara

Byline: Barbara Blades

January 2005

The last time I can remember eating normally was January 2005. My birthday is on January 5th and I had already planned on eating someplace special. On January 4th I had a biopsy, and following my birthday on the 7th I learned I had stage 3 squamous cell carcinoma.   It was in the lymph nodes of my neck and in the base of my tongue.

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YOU’RE IN THE ARMY NOW – Diary of a Survivor of Swallowing Boot Camp (pre-release copy)

by Stephen Alan Boyar

[NFOSD note. Join author Steve Boyar on his journey through an intense ten-day swallowing boot camp at MD Anderson Cancer Center. Experience with him his hope, determination, reality, and reflection on the drive to regain what most people take for granted, an ability to enjoy a meal, coffee, or drinks with family and friends. A journey update will be posted daily over the next eleven days.]

After a long career as an advertising copywriter and marketing executive, Steve is reinventing himself as a writer of stories for children. He recently earned his Master of Fine Arts degree in Creative Writing from The New School, and is working on a picture book and middle grade novel. He also tutors kids in writing and English. Steve can be reached at stephenalanboyar@gmail.com.

© 2013 Stephen Alan Boyar

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A Daughter’s Thoughts – Happy Father’s Day, Dad

Byline: Lisa Ingrassia

I have always been a “daddy’s girl”, so when my father was diagnosed with Stage IV base of the tongue cancer in late December of 2008 my entire life changed.  The days following my Dad’s diagnosis are forever etched in my brain.  Our family prepared for the fight of our lives. I quickly learned that when a cancer patient said he was “battling” cancer, he certainly was.  The weeks of my Dad’s intensive radiation and chemotherapy treatments were grueling and often times testing.

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Jack is Back – Two Week Swallowing “Boot Camp”

A Daily Log of my experiences by Jack Eadon

[Editors note. The NFOSD published Jack Eadon’s story in mid-November. He has a website, www.jacksgettingback.com where he has chronicled his medical and personal journey. On January 14, 2013 he began an intensive two week “Boot Camp” to try and regain his swallowing ability. As President of the NFOSD, I communicate with a lot of people suffering from dysphagia. One of the pleasures of this position is meeting other people, like Jack, who are determined and committed to do what they need to succeed. The NFOSD wishes Jack the best and hopes this intensive approach to therapy opens a new avenue in our arsenal for fighting dysphagia.]

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Jack is Back! Rockstar, Business Owner and Author – He has Dysphagia

On March 24, 2012, Jack Eadon, along with his Team Jack walked the 6th Annual ABI Walk for Brain Injury Awareness at Huntington Beach in California. Jack is an incredible individual with an amazing story.

Jack is well aware of surgical injury. Since August, 2010, his fifth and final surgery, he has been unable to swallow and is tube fed. Diagnosed at an early age in 1978, Jack had 4 surgeries before his epidermoid brain tumor was completely excised in 2010. His battle with the epidermoid brain tumor has been challenging, yet he remains hopeful and determined.

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