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THE DREADED “YOUR NEW NORM” (PART 2)

[Editors note: THE DREADED “YOUR NEW NORM” is a two-part series written by Jim Rose. This is the second part of the series. Part 1 can be viewed by clicking here.]

As I became more physically fit I was sent to a physical therapist named Mike Vito.  This young man was very adapt and thorough at his job.  He pressed me to seek answers from my surgeon that he couldn’t find in my surgical reports.  It turned out that the nerve that made my rotor cuff work had to be severed in order to place my pectoral muscle in my throat.  With this knowledge Mike designed a lifelong exercise program that would help me regain use of my right arm.

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Voiceless, Hungry, and Determined at Sixteen

2014-08-19 15.31.31[Editor’s note. This Patient Story is the first of a two part series written by a member of the NFOSD team from a written interview with patient Angelica Hunsucker. All content stems directly from responses to documented interview questions and has been approved in written form by Angelica.]

An Introduction

Imagine having a delicious family meal with laughter, conversation between bites, and clinking utensils transform into sustenance in the form of liquid vitamins and nutrients poured into your stomach through a tube. This liquid diet has replaced my memories of favorite foods and social meals for the past ten years. My name is Angelica Hunsucker. I’m a twenty-six-year-old disabled mother of two beautiful little girls. This is the story of how my whole world was turned upside down at age sixteen.

 

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THE DREADED “YOUR NEW NORM” (PART 1)

SCAN0223[Editors note: THE DREADED “YOUR NEW NORM” is a two-part series written by Jim Rose. This is the first part of the series.]

My name is Jim Rose and in 2009, eight months after retiring from a 47 year career in the auto industry, I was diagnosed with stage IV oropharyngeal and pharyngeal squamous cell carcinoma.  Within 3.5 weeks I was biopsied, scoped and put through 10 hours of radical surgery.

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The Real Life by Carolyn Anderson

On December 4, 2009, my entire life changed forever in a way that I never dreamed. I was a school teacher for 32 years, having retired in June of 2009.  I looked forward to retirement and all that went with it.  Instead, my oncologist at Vanderbilt Hospital diagnosed me with Adenocarcinoma and Squamous-cell carcinoma of the salivary gland. In the removal of the salivary gland, I would lose half of my tongue, my salivary gland, and a lymph node; the result of which would be my inability to eat or drink because I was unable to swallow. Numbed by this massive prognosis, my major thought was, “Would I be able to live through it.”

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Looking Down the Barrel of a Feeding Tube

Barbara

Byline: Barbara Blades

January 2005

The last time I can remember eating normally was January 2005. My birthday is on January 5th and I had already planned on eating someplace special. On January 4th I had a biopsy, and following my birthday on the 7th I learned I had stage 3 squamous cell carcinoma.   It was in the lymph nodes of my neck and in the base of my tongue.

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