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NEW WEBINAR! Living with Dysphagia: A Patient & Caregiver Panel (7/14/15)

The National Foundation of Swallowing Disorders, with support from Cook Medical, is proud to present the second series of patient-centered webinars on the latest research and information on swallowing disorders. Experts in the field of swallowing disorders will present information on topics such as esophageal dilation, lymphedema, tracheotomies, and more! If you are a Speech Language Pathologist (SLP) or know someone with a swallowing disorder, please share this web page with them.


Webinar #1:

Living with Dysphagia: A Patient & Caregiver Panel

Click Here To Register

Date: July 14th, 2015 (Tuesday)

Time: 8:00 PM EDT (7:00 PM CDT, 6:00 PM MDT, 5:00 PM PDT)

Description: This webinar will consist of a panel of patients and caregivers who have been impacted by dysphagia. The panel will be moderated by a medical speech-language pathologist with expertise in swallowing disorders. Each panelist will briefly share their experience with dysphagia.  The webinar will then be opened to the audience to ask both general questions to the entire panel and specific questions directed towards an individual panelist.

Moderator: Ms. Mary Spremulli, MA, CCC-SLP,  is owner of Voice Aerobics, LLC, a Speech-Language PIMG_2596 Maryathology Private Practice located in SW Florida. She holds a speech-language pathology license in Florida, Ohio, and North Carolina, and a nursing license in Florida. She is a faculty member of Parkinson Place in Sarasota, FL, and a member of the Education Committee of the World Parkinson Program. . Ms. Spremulli has been a Clinical Consultant with Passy-Muir, Inc. for over 20 years providing education to professionals and patients, and she has published articles on the topic of patient education. Since 2013, Ms. Spremulli has hosted a monthly podcast focusing on topics related to living well with Parkinson’s and other neurological diseases.

Panelist:  Elisa Rudgers, mother of a child with dysphagia: My son’s name is Rydr Rudgers. He was diagnosed at 2 weeks old while in the NICU. He had his g-tube put in at 4 weeks old.  His tube was removed in January 2014 (haScreen Shot 2015-06-12 at 2.56.03 PMlf-way through Kindergarten).  Although he no longer requires a feeding tube, he is not able to eat & drink at an age appropriate level and requires a great deal of close supervision/monitoring when eating/drinking.  Rydr continues to amaze all of us with the amount of time and effort he puts into learning/practicing how to eat and drink safely.  His progress has been slow, but he keeps progressing!

Screen Shot 2015-06-12 at 3.10.25 PMPanelist: Jeff Mauerman, Oral cancer survivor with dysphagia, who, in January 2015, became the first patient in the United States to be implanted with the swallow expansion device (SED), which allows him to have manual control over the opening of his upper esophageal sphincter. Jeff is now consuming 100% of his hydration orally and is hopeful to eat solid foods in the future.

Panelist: Ed Steger, Head and Neck cancer survivor, was diagnosed with stage IV cancer in early 2005. He began witEd Stegerh radiation treatment which was followed by six surgeries, eight different chemotherapy regimens and 4 serious local recurrences. Twice during the 2005/6 timeframe, he was given months to live and spent 2007/2008 in palliative care. The recurrences stopped in late 2007, a result of intense toxic chemotherapy; he has had no evidence of disease since then. A 12 hour salvage surgery in mid-2006 left him with a life time of severe dysphagia and a moderate speech impairment. He became the volunteer president of the National Foundation of Swallowing Disorders in late 2011.

Panelist: Sonia Blue, stroke survivor: As a result of a stroke and then surgical removal of a brain lesion in 2003photo 1, Sonia’s dysphagia left her tube-dependent for 6 ½ years. Traveling the country to pursue all available treatments to no avail, Sonia began working with Dr. Belafsky and Jan Pryor in 2005.  With their help and her own efforts, her tube was removed and she began eating again in 2009.

Panelist: Norma Angus, wife and caregiver of Pete who was diagnosed with multisystem atrophy, which is classified as one of the Parkinson’s Plus syndromes. Pete experiences severe dysphagia and with Norma’s help, has remained aspiration free.


Duration: About 15 minutes of patient/caregiver introductions & 60 minutes of Q&A from participants

Cost: 2015 Members = Free! Click here to open our 2015 membership page and read about our membership benefits.

Cost: Non-members, pleases visit our FAQ page

The NFOSD is an all-volunteer, 501(c)(3) organization and all donations, including membership fees, are tax deductible. Benefits of an annual membership include our “Swallowing Disorders can Affect Anyone” tri-fold brochure (including free mailing in the US), a discount on participation in our patient-oriented dysphagia webinars, access to our Medical Advisory and select Foundation board members on an as-needed basis, and inclusion of your NFOSD support on your resume or CV.

Fee Disclaimer:  Fees must be paid online through the secure Network for Good DonateNow system. You can use a PayPal account or a credit card. The fee will be refunded if you end up with a poor Internet connection to the Webinar; it will not be refunded if for some reason your plans change and you could not attend. If you cannot afford the fee and think that the webinar would be beneficial, please email info@nfosd.com for a fee waiver.

Please add this to your calendar.  All you need is a computer with sound capabilities, a web browser, and a reasonable Internet connection. To sign up, click the link below. Once you fill out the registration, the page will refresh and there will be a confirmation message that your registration was received.

Click Here to register. Seats are limited, so register now.

We hope you are able to attend this event!

Medical disclaimer. This Webinar is for informational purposes only and should not be used as a substitute for consultation with an appropriate health care professional, as each individual’s medical situation is unique. It is important that you consult with your medical professional (e.g., physician, SLP) before implementing any course of treatment. Experiences that are new to you should be done with the help of a caregiver and when access to emergency medical care is available.

Please visit our Frequently Asked Questions page for information on becoming a member, webinar fees, time zone assistance, and other useful information.

The NFOSD would like to recognize and thank Cook Medical for their financial support of this Dysphagia Webinar Series.

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Next Webinar in the Series: 

Presenter: Dr. Peter Belafsky with support of Cook Medical

Date: September 15, 2015 at 8pm EDT (5pm PDT)

Topic: Esophageal Dilation

More information coming soon…

Details

Date:
07.14.2015
Time:
5:00 pm - 6:30 pm

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